UNITED KINGDOM
The Neurofibromatosis Association
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Main Office Adress:
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The Neurofibromatosis Association Quayside House, 38 High Street KT11HL Kingston on Thames UK |
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General Email:
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info@nfauk.org |
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Website Adress:
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www.nfauk.org |
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Phone:
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+44 20 8439 1234 |
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+44 20 8439 1200 |
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President:
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Clare Webb |
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Board Members:
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Bob Bestow, vice chairman Mark Stevens, secretary |
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Amount of Members:
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2000 | ||
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Aims:
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* provide help, support and advice to those affected by either form of Neurofibromatosis, their families and the professionals working with them.To do this we employ a team of hospital based professional Neurofibromatosis Specialist Advisors around the UK. * provide relevant, up to date information on both forms of Neurofibromatosis for professionals, families and individuals. * fund research into both types of Neurofibromatosis. * provide activity holidays and breaks for children and adults with either form of Neurofibromatosis * encourage the establishment of local groups and volunteers throughout the UK* raise awareness of the Neurofibromatoses amongst the general public through fundraising activities |
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Main Activities:
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Main Activities Small Text | ||
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Recent Realisations:
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Realisations | ||
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