Tally Vink, secretary
Hans Bruggeman, treasurer
Petra Veldman
Monique Schuijlenburg
Rene Hamburg
Piet Jan Jansen
Nina Hlillegers
Gerard Janson

 Aprox 900

Making neurofibromatose more known, giving people with NF possibilities to meet other people with NF, making information about NF available for those who are interested.

• The activities we have to meet these aims are once a year a lecture about medical aspects of NF, we also try to have a lecture about social problems people affected by NF are confronted with. We are trying to hold two of this meetings in a year.
  
• The youth group meets four times a year by one of the youth at home and oncwe a year we organize a weekend for them. On these occasions they talk with each other obout their problems and they have a lot of fun together.
  
• This year we start with two new groups, one for the older people with NF we organise a day where they can met and to together and go out together as a number of them don't finf it ease to go to the zoo on their own because everybodt stares at them.
  
• The second group we start this year is for the sibblings of people affected by NF, as they see that the brother or sister with NF get more attention.