ITALY
LINFA Lottiamo Insieme per la NeuroFobromatosi - onlus
|
|
 |
Main Office Adress:
|
LINFA, Lottiamo Insieme per la NeuroFibromatosi - onlus
|
|
General Email:
|
associaz.linfa@libero.it |
||
|
Website Adress:
|
http:// www.associazionelinfa.it |
||
|
Phone:
|
+049.8213513 |
||
| Fax: |
+049.8211425 |
||
|
|||
|
President:
|
Longo Daniela |
||
|
Board Members:
|
secretary Boscaro Dario, treasurer Rossi Eclio, Severino Bacco, Marikka Martellato, Lugi Meneguzzi, Maria tresa Menin, Alessandra Mion, Emilio Wailant |
||
|
Amount of Members:
|
aprox. 150 members and 100 supporting members |
||
|
|
|||
|
Aims:
|
Help the people concerned about NF |
||
|
Main Activities:
|
LINFA gives information about NF, organizes a meeting once a year, and publishes in formation boocklets. we organize specificn projects for youngsters affected by NF, in order to help them to to know NF and to meet other boys and girls with the same problems. last year we also send information on F to all pediatriic specialists |
||
|
Recent Realisations:
|
meetings such as General Meeting and information meetings, publications such as a periodical news paper and various other publications, a research plan, Since its birth, Associazione LINFA has given his contribution for the research plan about NF. The plans and persons concerned are suggested by the Medical Board. These are young Doctors or Biologists that cooperate with the NF centre in Padova, Via Giustiniani. |
||
|
|||
|
|
