ITALY

A.N.F. Associazione Neuro Fibromatosi - onlus

		Main Office Adress:	A.N.F. Assiciazione Neuro Fibromatosi - onlus Via Milano 21/b 43100 Parma Italy
		General Email:	a.n.f.@neurofibromatosi.org
		Website Adress:	http://www.neurofibromatosi.org
		Phone:	+39 0521 77 14 57
		Fax:	+39 0521 77 14 57

		President:	Corrado Melegari
		Board Members:	Michele Palomba, vice-president, Giuseppe Porcu,councillor and secretary, Adelia Frigè Moioli,councilor, Antonello Corbetta, councillor, Felice Mostacci,councillor , Marzia Cassani,councillor , Michela Corradini,councilor, Michele Curatolo, councillor Mariastella Elsenberg,
		Amount of Members:	about 1500

		Aims:	divulge the knowledge of the NF, uniform and improve the diagnostic-welfare Procedures, support studies and researches , promote the cooperation within medical, biological and social sphere, support the international contacts and the exchanges among similar associations organize two yearly meeting for the members open new branches in the Italian regions print and diffusion of information material of the NF and on the assistential center print and diffusion of a Newsletter, a wishing card and a tee-shirt with the logo of our Association; direct participation in the Tribunale del Diritto del Malato, in Telethon, and in Meetings, Congresses and Conferences dealing with our pathology
		Main Activities:
		Recent Realisations:	We have organized from 1993 up to the date , 4 NF National Congresses, we organize banquets, collect funds and shows to spread the NF knowledge We have been conferred in our town some important awards We are preparing a project dealing with the learning difficulties of the children with NF