|
IRELAND
Neurofibromatosis Association of Ireland,
registered charity CHY 6657
  |
|
Main Office Adress:
|
Neurofibromatosis Association of Ireland
Carmichael Centre,
North Brunswick Street,
Dublin 7
IRELAND
|
|
|
General Email:
|
nfaireland@eircom.net |
|
|
Website Adress:
|
http://www.nfaireland.ie |
|
|
Phone:
|
01– 8726338 |
|
|
|
Fax: |
01– 8735737 |
|
|
|
|
|
|
|
|
President:
|
Patricia Nutty |
|
|
|
Board Members:
|
Jimmy Corr, secretary
Eddie Creevey, treasurer
Paddy Griffin, ceo
|
|
|
|
|
|
|
|
|
Aims:
|
- Provide information on NF to Patients, Doctors, Consultants and Teachers also to promote awareness and an understanding of the problems encountered with the disorder.
- To organise seminars to disseminate information/progress on research into NF.
- To organize public awareness campaigns.
- To provide advocacy and the provision of information.
- To source information on specialised medical services yet unavailable in Ireland.
- To encourage scientific research that might lead to a cure.
- To provide financial aid where possible towards research.
|
|
|
|
Recent Realisations:
|
- 24-hour Help Line
- Counseling Service
- Respite
- Bi-monthly Newsletter “Neuro News” (500 copies distributed countrywide)
- Procuring & circulating literature / Information Packs on NF.
- Information Evenings.
- Awareness Programme focused at NF families and Health Professionals.
- Home and Hospital visits.
- Referral service to medical services and other support groups
- Information/promotion of research into finding a cure
- Linking patients and families together to overcome the feeling of isolation
- Attending meetings of associated bodies.
- Administrating Grant Aid from the State Sector and other bodies
|
|
|
|
|
|
|
|
|
|
|
|
|