GERMANY

Von recklinghausen-Gesellshaft e.V.

Main Office Adress:

Von Recklinghausen Gesellschaft e.V.

im Klinikum Ochsenzoll

Langenhorner Chaussee 560

22419 Hamburg

Germany
General Email:
 info@von-recklinghausen.org
Website Adress:

http://www.neurofibromatose.de

http://von-recklinghausen.org

http://www.nf2.de
Phone:
 +49.40 1818 87 2822
Fax +49.40 5277 462

President:

co-president:

Dr V.F.Mautner Pr MD , Hamburg

Frank Wilke, Frankfurt

Board Members:

Rainer Swiderski, treasurer, Hamburg
Amount of Members:

 About 1480

regional groups in:

Berlin, Bremen, Chemnitz, Cologne, Dresden, Frankfurt, Freiburg, Gera,

Hamburg, hannover, Karlsruhe, Korbach, Krefend, Munich, Olpe,

Regensburg, Saarbruecken, Stade, Ulm, Willemshaven
Aims:
  • Healing/Successfull treatment of Neurofibromatosis
  • Clearing up affected people, their relatives, medical professionals
  • and society
  • Publishing of information material e.g. brochures
  • Improvement of medical and psychological care
  • Supporting for science an research
  • Supporting for social integration of affected people
Main Activities:
  • The Von-Recklinghausen-Gesellschaft e.V. offers affected people to get in contact to an interdisciplinary health-care-center, which is specialised on Neurofibromatosis to discuss the further therapeutical proceeding with the NF-doctors.
  • The Von-Recklinghausen-Gesellschaft e.V. offers affected people the chance of social integration through getting in contact with other affected people. Affected people shall live as far as possible self-dependent. This requires the offer of seminaries with topics concerning the handling of the disease.
  • The Von-Recklinghausen-Gesellschaft e.V. has enabled some scientific researches especially concerning leraning difficulties of NF1-children and molecular genetic causes of NF2.
  • The Von-Recklinghausen-Gesellschaft e.V. makes intenive efforts on raising money from private sponsors and government to finance their activities and tries to win persons, who are well-known in the public life, for patronages.
Subdivisions:

The Von-Recklinghausen-Gesellschaft e.V. is a federal association, which currently is organized in round about 20 regional groups seated in different parts of Germany and one national NF2-group.

They all offer a wide palette of activities. In these groups there are working round about 50 contact persons, which are trained by special seminaries to get fit on their job, to be on the side of their fellow