FRANCE

Association Neurofibromatoses et Recklinghausen

 

 

Main Office Adress:
 Association Neurofibromatoses et Recklinghausen
34 vieux Chemin de Grenade,
FR 31700 Blagnac
FRANCE
General Email:
 ass.neurofibromatoses@wanadoo.fr
Website Adress:

http://www.anrfrance.org
Phone:
 +33 561 300 337
President:
 Anne HENRION
International Contacts:

Bernard BABU, bernardbabu@wanadoo 
 41, rue d'Iéna
FR 44000 Nantes
FRANCE
Amount of Members:

About 1000
Aims:

- Information about the disease (to members, doctors in general, para-medics, teaching professions, the public at large);

- support and help to peope affected and their families ;
- stimulation of all initiatives to improve the knowledge, the diagnosis, the prevention, the research, the cure about these ailments.

(NB: for those purposes  the association has been recognised nationally of 'public utility' since may 3, 2004.)
Main Activities:
Annual congress, this year in Nantes:

"JOURNEES NATIONAL NF", March 18 and 19, 2005

First day about information on medical research plus discussion groups with psychologists, second day more about the life of the association. These 'journees nationales NF' are open to all interested people, (ill people, members, doctors, ...).