DENMARK
Dansk forening for Neurofibromatosis Recklinghausen
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Main Office Adress:
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Dansk forening for Neurofibromatosis Recklinghausen Dronninggards Alle 10C, 1.th. DK 2840 Holte DENMARK |
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General Email:
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karinpersson@mbox301.get2net.dk | |||
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Website Adress:
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http://www.nfrecklinghausen.dk | |||
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Phone:
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+45 4570227010 & +45 45411580 | |||
| Fax: | +45 45411680 | |||
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President:
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Karin PERSSON, karinpersson@mbox301.get2net.dk | |||
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Board Members:
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Henning Oettinger, vice-president |
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Amount of Members:
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About 465 |
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Aims:
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To support people and families with NF, to spread knowledge about thedisease, surport scientific research in its prevention and treatment. |
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Recent Realisations:
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In 2004 the ass. held annual meeting with scientifics lectures, we atempt a fair for handicap, course for young people: How to reply for job. Our youth group had a trip to Legoland, and a Cristmas Meeting, the. ass. had 2 weekend trips to (badeland), a course for parents, the youth group had a trip to Lego Land , the lokal groups have held some meetings. |
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