BELGIUM

NF KONTAKT vzw


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Main Office Address:
NF KONTAKT vzw
Slachthuisstraat 73
9100 Sint-Niklaas
BELGIUM
General Email:
nf@nfkontakt.be
Website Address:
http://nfvlaanderen.nfkontakt.be
Phone:
+32 3 766 13 41
President:
Mia DESMET mia@nfkontakt.be
Board Members:

Adrienne POELEMANS, secretary

Marleen HOUBEN, treasurer

Machteld Van Kerckhove, public relations


Amount of Members:

about 450 families affected by NF1

about 20 families affected by NF 2

about 300 supporting members

Aims:
to increase quality of life for all people affected
Main Activities:

Office in Sint-Niklaas: open for everyone needing information, offering support for families concerned and  advice and training material for professionals.

Volunteers are realizing the program including:

  • News paper 4 times a year,
  • Discussion  groups 2 or 3 times a year,
  • Scientific meeting on NF at least once a year,
  • Activities and discussion groups for different age groups,
  • Educational programs for Teens,
  • Information programs for teachers and educators
  • Summer Camps,
Various fund raising activities
Recent Realisations:
  • An NF family weekend,
  • a Public awareness day,
  • a training weekend for youngsters affected,
  • Publication “NF for kids who want to know  all about it
and all activities requested as participants in the EC project.