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Main Office Address:
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NF KONTAKT vzw
Slachthuisstraat 73
9100 Sint-Niklaas
BELGIUM |
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General Email:
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nf@nfkontakt.be |
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Website Address:
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http://nfvlaanderen.nfkontakt.be |
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Phone:
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+32 3 766 13 41
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President:
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Mia DESMET mia@nfkontakt.be |
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Board Members:
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Adrienne POELEMANS, secretary
Marleen HOUBEN, treasurer
Machteld Van Kerckhove, public relations
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Amount of Members:
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about 450 families affected by NF1
about 20 families affected by NF 2
about 300 supporting members |
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Aims:
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to increase quality of life for all people affected |
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Main Activities:
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Office in Sint-Niklaas: open for everyone needing information, offering support for families concerned and advice and training material for professionals.
Volunteers are realizing the program including:
- News paper 4 times a year,
- Discussion groups 2 or 3 times a year,
- Scientific meeting on NF at least once a year,
- Activities and discussion groups for different age groups,
- Educational programs for Teens,
- Information programs for teachers and educators
- Summer Camps,
Various fund raising activities |
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Recent Realisations:
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- An NF family weekend,
- a Public awareness day,
- a training weekend for youngsters affected,
- Publication “NF for kids who want to know all about it
and all activities requested as participants in the EC project. |
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