Quick Links
	Founding Members NF Europe	NF Associations in Europe
	Honoray Members NF Europe	NF Clinics in Europe
	Scientific Advisory Board NF Europe	NF Related Information on the Web

Founding Members NF Europe
	Belgium
		NF KONTAKT vzw represented by Mia De Scheirder-Desmet
	Bulgaria
		NFA, represented by Dr. George Poptodoroc, MD
	Denmark
		Dansk forening for Neurofibromatosis Recklinghausen represented by Kathe Raunkjaer
	Finland
		Suomen neurofibromatoosiyhdistys ry represented by Dr Minna Pöyhönen, MD
	France
		Association Neurofibromatoses et Recklinghausen represented by Gérard Donadieu Ligue contre les neurofibromatoses represented by Jean Claude Lopez
	Germany
		Von Recklinghausen-Gesellschaft e.V represented by Frank Wilke
	Italy
		ANF represented by Elisabetta Bissignani FIAN represented by Dr Maurizzio Clementi MD
	Norway
		Norsk Forening for Neurofibromatose represented by Toril Rordam
	Spain
		Asociacion Espanola De NF represented by Pilar Muñoz Villalobos
	Sweden
		NF Föreningen Sverge represented by Anita Engström
	Switzerland
		SNFV represented by Dr Boltshauser Eugene, MD
	Scientists
		Prof. Dr Eric Legius, MD Dr Victor-Felix Mauntner, MD
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Honorary members

from Belgium

from Denmark

Dr. Eric legius Pr. MD
Dr. Ludwine Messiaen Pr. MD

Dr. John Ostergaard
Dr. Vibeke Maniche
Mrs. Käthe Raunkjær

from Finland

from Germany

Dr. Minna Pöyhönen

Dr. Victor Mautner
Prof. Winfrid Kröne

from Italy

from Norway

Dr. Romano Tenconi

Dr. Arvid Heiberg

from Sweden

from Switzerland

Dr. Birgitta Rembeck
Dr. Britt Marie Anderlid

Dr. Eugen Boltshauser

from UK

from USA

Dr. Susan Huson

Dr. Vincent Riccardi, MD
Dr. Bruce Korf, Pr. MD
Mr. Peter Bellermann

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Scientific Advisory board

Belgium
	Centre Human genetics KUL	Eric Legius Prof. MD	paediatric, geneticist, oncologist

Denmark
		John Ostergaard MD

Finland
	Fam. Federation of Finland, Helsinki	Minna Pöyhönen MD	clinical geneticist

France
	Hop. Henri Mondor, Paris	Pierre Wolkenstein MD	dermatologist

Germany
	Univ. Hospital Hamburg	Victor Mautner MD	neurosurgeon

Italy
	Pediatric Depart; Univ Padova	Romani Tenconi MD	pediatric

Norway
		Arvid Heiberg MD

Poland
	Center Public Health Warchaw	Chrystyna Chrzanowska MD	psychologist

Portugal
	Santa Maria Hospital Lisbon	Isabel Cordeiro MD	clinical genetic

Spain
	Hospital Ramón y Cajal, Madrid	Carmen Valero Quiròs MD	genetic biologist

Sweden
		Birgitta Rembeck MD	psychologist

Switzerland
	Kinderspital Zurich	Eugen Boltshauzer MD	pediatric specialist

UK
	UMDS hospital London	Rosalie E. Ferner MD	neuroscientist
		Susan Huson MD

USA
	KAUL Human Genet. Burmingh.AL	Bruce Korf Pr. MD
	KAUL Human Genet. Burmingh.AL	Ludwine Messiaen MD	genetic research
		Dr. Vincent Riccardi, MD

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NF Assosiations in Europe

Overview of NF Europe Member Associations


Austria	http://www.atnet.at/nf
Belgium NL	http://nfvlaanderen.nfkontakt.be
Belgium FR	http://www.neurofibromatose.be.tf
Bulgaria	http://go.to/NFABulgaria
Denmark	http://www.nfrecklinghausen.dk
Finland	http://www.nf-yhdistys.org
France	http://anrfrance.free.fr
France	http://www.chez.com/neurofibromatos
Germany	http://www.von-recklinghausen.org
Italy ANF	http://www.neurofibromatosi.org
Italy LINFA	http://www.associazionelinfa.it
Ireland	http://www.nfaireland.ie
Netherlands	http://www.neurofibromatose.nl
South Netherlands	http://www.nfinfo.freeler.nl
Norway	http://nevrofibromatose.com
Poland	http://www.nfpolska.com
Portugal	no website: contact apnf@iol.pt
Spain	http://www.aeenf.com
Sweden	http://www.nfforeningen.com
Switzerland	http://www.neurofibromatose.ch
Switzerland	http://www.neurofibromatosis-network.org/ch-ger-nf.htm
Turkey	http://www.nf.hacettepe.edu.tr/link.htm
UK	http://www.nfauk.org

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NF clinics in Europe

Country	reference Dr.	City	Contact

Austria
Belgium	Prof. Dr Eric Legius	KU Leuven	Eric.Legius@uz.kuleuven.ac.be
Belgium	Dr. Maryse Bonduelle	VU Brussels	lgenbem@az.vub.ac.be
Belgium	Dr. Geert Mortier	RU Ghent	geert.mortier@ugent.be
Belgium	Dr. Jenneke Van den Ende	UI Antwerp	jvdende@uia.ua.ac.be
Bulgaria	Dr. Lidia Georgieva MSc.MD.	Sofia	u116@omega.bg
Denmark	Dr. John Østergaard	Copenhagen	jao@sks.aaa.dk
Finland	Dr. Minna Poyhonen	Helsinki	minna.poyhonen@vaestoliitto.fi
Finland	Dr. Sirkku Peltonen	Turku	sirkku.peltonen@tyhs.fi
France	Dr. Pierre Wolkenstein	Paris	pierre.wolkenstein@hmn.ap-hop-paris.fr
Germany	Dr. Helena Jung	Cologne	info@genetikzentrum.de
Germany	Dr. Dieter Kaufmann	Ulm	dieter.kaufmann@medizin.uni-ulm.de
Greece
Italy	Pr.Dr. Romano Tenconi MD	Padova	genetica@pediatria.unipd.it
Ireland	Dr.Dr. Andrew Green	Dublin	tel: 01.409 6739
Netherlands	Drs.P.F.Ippel	Utrecht	tel: 030.2503800
Norway	Dr. Arvid Heiberg	Oslo	arvid.heiberg@rikshospitalet.no
Poland	Dr. Krystyna Chrzanowska	Warshow	chrzanowska@czd.waw.pl
Portugal	Dr. Isabel Cordeiro	Lisbon	isabel.cordeiro@hsm.min-saude.pt
Portugal	Pr. Jorge Saraiva	Coimbra	hpcgen@hotmail.com
Portugal	Dr. Margarida Lima	Porto	margarida.lima@igm.min.saude.pt
Spain	Dr. Carmen Valero Quiros	Madrid	tel: 913368542
Sweden	Dr. Britt Marie Anderlid		britt.marie.anderlid@cmm.ki.se
Switzerland	Dr. Eugen Boltshauser	Zûrich	eugen.boltshauser@kispi.unizh.ch
Turkey	Prof. Sukriye AYTER, PhD	Ankara	sayter@hacettepe.edu.tr
UK	Dr. Sudan Huson	Oxford	susan.huson@orh.nhs.uk

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NF Related Information on the Web

INFA - international NF association	http://neurofibromatosis.org
NF association USA	http://nf.org
NF incorporation USA	http://nfinc.org
childrens tumour foundation	http://www.ctf.org
more than 200 links on NF	http://www.edae.gr/neurofibromatosis.html
clear information on NF	http://www.understandingnf1.org/exp/int_exp_wci.html
Genetic science learning Center Utah	http://gslc.genetics.utah.edu/units/basics
Genetic education centre Kansas	http://www.kumc.edu/gec
understanding Genetic Testing	http://www.accessexcellence.org/AE/AEPC/NIH
clear information on NF1 & NF2	http://www.ygyh.org/nf
various information on NF2 and acoustic neuroma	http://www.webcrossings.com/nf2crew/links.html
scientific recourses on NF	http://neurosurgery.mgh.harvard.edu/NFR
scientific recources on NF2	http://neurosurgery.mgh.harvard.edu/NFclinic/NF2.htm
information on NF in French	http://www.aphp.fr/site/actualite/mag_neurofibromatoses.htm
NF clinic Medical School Harvard Massachussetts	http://neurosurgery.mgh.harvard.edu/NFclinic
Genetic centre CHG UZ KUL Leuven Belgium	http://www.uzleuven.be/UZroot/content/home/wieiswie/ diensten/cme/index.cfm
Genetic centre UZ VUB Brussels Belgium	http://www.azvub.be/index.jsp?Tag=CMGNL&MenuId=ERF
Genetic centre UZ RUG Ghent Belgium	http://www.uzgent.be:80/diensten/dienst_44.cfm
Genetic centre UZ UIA Antwerp Belgium	http://webhost.ua.ac.be/cmg/home.htm
Genetic centre Queen Giovanna Hospital, Sofia Bulgaria	http://www.hospital-queen-giovanna.org
Genetic centre, Helsinki, Finland	http://www.vaestoliitto.fi/english/activ/rakennesivut/ medgenet_frameset.htm
Genetic centre, Cologne, Germany	http://www.genetikzentrum.de
Genetic centre, Ulm Germany	http://www.uni-ulm.de/klinik/allg/0201_eselsberg.html
Genetic centre Uni pediatria, Padova Italy	http://www.genetica.pediatria.unipd.it/genetica/english/ indexing.htm
Genetic centre, Dublin Ireland	http://www.genetics.ie
Genetic centre, Utrecht Netherlands	http://www.umcutrecht.nl/afdeling/overzicht/ overzicht.asp?dep=13&mmid=94
Genetic centre Hosp. Santa Maria, Lisbon, Portugal	http://www.hsm.min-saude.pt/apps/ search/search_result.php
Genetic centre, Madrid Spain	http://www.hrc.es/
Genetic centre, Ankara, Turkey	http://www.hacettepe.edu.tr/
Tara's speach start of the worldwide NF public awareness month	http://www.bcnf.bc.ca/tara.htm
with fund raising activities for NF	http://www.gilliananderson.ws

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